Balancing Academics and Serious Illness

When your child has a serious or chronic illness, it's hard to think beyond the next treatment. While health is the first priority, education also is important. You'll want to help your child stay on top of schoolwork as much as possible and plan for when he or she can return to school.

Not only does staying connected to school bring academic, cognitive, psychological, and social benefits — it's also your child's legal right. Under federal law, kids with disabilities are entitled to educational support, and your child might qualify for free services under the Individuals with Disabilities Education Act (IDEA).

With a little planning and a lot of communication, you can help your child balance treatment and academics.

Plan Ahead

First, talk to your doctor about how long your child is likely to be away from school and whether the treatment might interfere with concentrating, doing homework, and meeting deadlines. Are there side effects that might have an academic impact? What does your doctor recommend when it comes to attendance, tutoring, or studying?

Then talk to the teachers and school staff, and encourage your child, if well enough, to do the same. It may be necessary to set a reduced schedule or shift due dates for papers and tests. With your help, your son or daughter can work with teachers to help plan the workload. The more notice teachers have, the easier it will be to come up with a flexible solution.

Some kids who spend a lot of time away from school or in the hospital have Individual Education Plans (IEPs). These are customized goals and learning strategies created by the teachers, school psychologists (or other specialists), and counselors. IEPs take a child's individual needs into account. Under the IDEA, kids who qualify for an IEP will receive one at no cost, in addition to receiving free support services (such as a tutor) to help them reach educational milestones. IEPs can be requested by you or anyone on your child's education team.

Seek Out Hospital-Based Support

If your child will be spending long stretches in the hospital, ask a doctor, nurse, or child-life specialist about onsite schooling. Many hospitals provide this service free of charge to their patients. The two most common types of educational support include bedside schooling and classroom schooling. Typically, bedside schooling is for children who are too ill to leave their hospital rooms or have weakened immune systems due to chemotherapy. Other kids who are well enough might be educated individually or in small groups in an onsite hospital classroom.

Licensed teachers who are K-12-certified in a variety of subjects and special education work intensively with students to make sure that they don't fall behind in their studies. To stay on track, hospital-based teachers work closely with teachers from a child's school to maintain curriculum continuity and ease reentry into the classroom when the child is well again. School is scheduled around medical tests and therapies, and always takes a child's medical condition and strength into consideration. Whether your child is being educated at school, in the hospital, or at home, remember that getting better is the main priority. So be realistic about what he or she can handle. Kids may feel an unspoken pressure from parents, teachers, and themselves to continue with schoolwork, and this anxiety could hurt their recovery.

Stay Connected

Maintaining ties with classmates and teachers can help your child maintain a sense of normalcy during this difficult time. Your child might even be able to listen to a lesson or join a class over the computer. Programs nationwide offer free or low-cost laptops for use in the hospital; check with your doctor or medical staff to see if this service is available to you.

In addition to academic isolation, your child may feel cut off socially from friends and classmates. Online social networking sites, email, instant messaging (IM), text messaging, and talking on the phone can help kids stay connected. Also consider encouraging a letter-writing, email, or care package campaign from classmates — you might even set up a collection box at school where they can deposit notes and pictures. Arrange for visits from your child's friends and, if your son or daughter is up to it, take the group out to school plays, sports events, classroom parties, and other social gatherings. Staying connected will make for a smoother transition socially and academically when your child returns to school after treatment. 

Reviewed by: Alycia Taggi

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Pediatric Care

You may remember, not too long ago, stepping into the pediatrician's office for your child's very first visit. And you might have been a little nervous as you got to know the person who'd be caring for your little one. But after years of interaction (complete with late-night phone calls, last-minute appointments, and trustworthy advice), your pediatrician probably feels like part of the family. So when the time comes for your child to transition into adult health care, it can be hard to say goodbye.

Done abruptly, this change can be overwhelming and anxiety-inducing for you and your child. But if you're both prepared and plan accordingly, it can be a smooth step on the path to adulthood.

Finding a New Doctor

Once kids become legal adults at age 18, they should visit an adult primary care physician (PCP), such as an internal medicine doctor (internist), a general practitioner, or a family medicine doctor. Your pediatrician, who is specifically trained to care for kids and teens, might be able to provide care for a little longer if your child is in college (usually until college graduation or age 21). But this varies from doctor to doctor, so be sure to ask.

Ask your pediatrician for a referral if you don't have a family doctor that your child wants to see or if your child has a chronic condition that will require an adult specialist's care. If your child has a rare condition, disability, or pediatric-onset condition (one that only develops in childhood), it may be challenging to find a PCP or adult specialist who is knowledgeable and comfortable caring for these complex needs. In this case, start searching for doctors early on, during the teen years.

Ask if your child can see a new doctor for a trial period; then, follow up with the pediatric specialist to discuss how things went and put both doctors in touch to plan for the transition of care. Allow plenty of time for this process — that way, if there is an issue your child can continue seeing the pediatric specialist until you find an adult provider who is a better fit.

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Sport Physicals

You know that playing sports helps keep kids fit and are a fun way for them to socialize and make friends. But you might not know why the physical kids may have to take at the beginning of their sports season is so important.

About Sports Physicals

In the sports medicine field, the sports physical exam — or preparticipation physical examination (PPE) — helps determine whether it's safe for kids to participate in a particular sport. Most states actually require that kids and teens have a sports physical before they can start a new sport or begin a new competitive season. But even if a PPE isn't required, doctors still highly recommend getting one.

The two main parts to a sports physical are the medical history and the physical exam.

Medical History

This part of the exam includes questions about:

• serious illnesses among family members
• illnesses that kids had when they were younger or may have now, such as asthma, diabetes, or epilepsy
• previous hospitalizations or surgeries
• allergies (to insect bites, for example)
• past injuries (including concussions, sprains, or bone fractures)
• whether the child has ever passed out, felt dizzy, had chest pain, or had trouble breathing during exercise
• any medications taken (including over-the-counter medications, herbal supplements, and prescription medications)

The medical history questions are usually on a form that you'll fill out with your child. Looking at patterns of illness in a family is a good indicator of any potential conditions kids might have. Most sports medicine doctors believe the medical history is the most important part of the sports physical exam, so take time to answer the questions carefully. It's unlikely that any health conditions your child has will prevent him or her from playing sports completely.

Physical Examination

During the physical part of the exam, the doctor will usually:

• record height and weight
• take a blood pressure and pulse (heart rate and rhythm) reading
• test your child's vision
• check the heart, lungs, abdomen, ears, nose, and throat
• evaluate your child's posture, joints, strength, and flexibility

Although most aspects of the exam will be the same for males and females, the doctor may ask girls and guys different questions if they've started or already gone through puberty. For example, if a girl is heavily involved in a lot of active sports, the doctor may ask her about her period and diet to make sure she doesn't have something like female athlete triad.

A doctor will also ask questions about use of drugs, alcohol, or dietary supplements, including steroids or other "performance enhancers" and weight-loss supplements, because these can affect a person's health. At the end of the exam, the doctor will either fill out and sign a form if everything checks out OK or, in some cases, recommend a follow-up exam, additional tests, or specific treatment for medical problems.

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